What a wonky few months it's been. I think I forgot to tell my bloggy peeps about the gene test results...
So, the majic answer is... there is no answer!
My gene tests are inconclusive... a big fat I have no clue Noelle, your genes are not normal.
Apparently this happens in about 5-10% of people tested.
Apparently I forgot that she mentioned this in my initial appointment. It is my humble opinion that it should be good practice to call the patient who has been waiting 14 months for test results to tell them it is normal to have an inclusive result. Given that I was a little bit post chemo and a little bit deer in headlights (where are Donny & Marie when you need them??) at the first gene counselling session I think the pre result reminder would have been helpful.
In my mind the gene test result was going to help my decision about which course to take with regards to reconstruction. I have always been fairly sure I want to either have no breasts or two breasts that match, the unbalanced thing is upsetting to me(only mildly, but "You can't chop down the Symmetry".. Thanks Jane!) ... and I thought having a positive gene test would make the decision to get the other one removed for a fresh start or maybe two new boobs. Having a negative one would help too... more for the worry side of things. Having a neutral answer is no help at all.
SOOOOO.. now I get to make the decision without the gene thing .... and always wondering if I have the gene etc etc,
Getting one new breast seems like my choice for sure now, but part of me thought it might be fun to get the other one a little bigger and have a brand new, slightly larger set.. just a little... I am not a plastic surgery kinda person, but if I am gonna have one.... what diff does it make?
Next questions I guess are weighing the risks of an implant on the healthy breast and how it will impact finding possible future cancer.